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Showing posts with label TINU. Show all posts
Showing posts with label TINU. Show all posts

Tuesday, January 29, 2013

雨過天晴

So everything's finally over.

Went to see doctor last week and he told me that I can stop taking prednisone in one more month. Also, I was worried that my acute kidney injury turned chronic after I saw the words Chronic Kidney Disease on my previous visit summary. So I asked the doctor last week and he told me that mine wasn't chronic, because my kidneys were functioning well in the past few months.

Was taking 3mg of prednisone per day before having seen the doctor, and now I'm taking 2mg for 2 weeks. After that I will be taking 1mg for 2 weeks, and I will be ALL DONE with the freakin prednisone!!!

It has been almost a year. Last year's February, my eyes turned red, started using prednisolone eyedrops. In March, I was diagnosed with TINU syndrome. Did biopsy in April and started taking prednisone (80mg/day) and other kinds of medicine a few days later. Stopped using the eyedrops in May. Dosage decreased gradually, from 80 to 60, 40, 20, 15, 10, 7.5, 5, 4, 3 and 2 for now.

Lost 10lbs in February due to TINU. Gained 20lbs after I started taking prednisone. Face became so round and puffy (pictures can be found in previous posts). So my face is getting smaller as the dose is decreasing. I also lost around 6lbs.

Took this picture yesterday. Face is smaller than before!!

Holding my Tzu Ching name tag with the photo taken last year's july, when my face was still puffy
Top left: Taken last year's summer, when I just started taking prednisone for a few months. Face was more puffy before this.
Top right: Beginning of September.
Bottom left: Not sure when was this taken. Should be November. Face was a lil smaller.
Bottom right: Just a few days ago!! 
Can't wait to stop taking prednisone. I hope I can slim down for my commencement in May!! (2 more months to go! I need to go to RPAC more often) :D


Thursday, August 30, 2012

autumn 2012

haven't updated my blog for like... 2 weeks? okay so here are some updates.

school started last wednesday, and i'm currently taking 5 classes: 3 logistics classes and 2 italian classes. italian classes are getting harder now, compared to the previous 5 classes that i took, which were "easy A's". almost everyone in my italian classes are italian majors/ minors and a lot of them had study abroad experience in italy. some of them are really good at speaking italian, especially a girl named courtney who speaks really like an italian omg. some people who were in my italian 202 classes and went study abroad at lecce, italy last summer, improved a lot in speaking and writing (although i'm still better). i'm really jealousssssssss. i would be speaking like an italian too if i had the chance to go study abroad last summer.

work from 7:30am to 10am everyday this semester. gosh you know what? i've to wake up at 5:55am everyday, and 5:30am if it's raining and i can't ride my bike to work. perhaps this is a good thing. god wants me to sleep early and wake up early lol, but i still feel tired everyday. i always fall asleep in classes and i just feel like taking nap after going home. gay puts me at b3 this semester yay one of my favorite classroom. although i wanna be in b1 (because oliver is there!), but it's okay coz it's just nextdoor! had not seen oliver and other babies in b1 for a while and they are now big boys and girls. guess what? i saw oliver climbing up and down this morning. sigh. i miss the little and tiny oliver. it's also almost time for leigha to learn walking! and i guess eva can crawl now. gavin is no longer the sad baby who always cries. and quintus is growing so big now! i wish i could work at b1 but b3 babies are adorable tooooo! since i work at 7:30am - 10am, so i always get to see jacob, cruz, brielle, and the new baby rebecca (she's an italian!). cruz is super cute omg i like how he smiles at me.

by the way i just knew my blood test result. doctor said my blood test result was good, creatinine level was around 0.9 now woohooo. so he suggested me to take 10mg after 2 weeks (i was supposed to take 12.5mg). what a good news!

oh i haven't talked about my super awesome trip. stayed at vancouver for around 5 days, then i flew back to the states - san francisco. stayed there for like, 3 days, then i took greyhound to los angeles. i stayed at a hostel at hollywood for 2 nights and the hi hostel at santa monica for 1 night. then i took greyhound to san diego and went back to columbus after 2 days. i would answer los angeles if you asked me which was my favourite place.

what i thought about vancouver: can't deny that it's really a good city for living. great scenery, great food, and lots of shopping malls! but i didn't shop there because the tax is tooooo high. i'd rather shop at columbus lol. i actually stayed at my aunt's house at richmond. you wouldn't believe what you see.... richmond is like a "small hong kong". i could hardly spot any white at richmond and everyone speaks cantonese!

what i thought about san francisco: i love the chinatown! so many asian restaurants and i couldn't decide which to go in! san francisco is a beautiful city but i wouldn't think of living there because there are too many cars and .... hills! you know what i was so tired climbing the hills and it was scary to look down from top of the hills.

what i thought about los angeles: i love hollywood and i was so glad that i chose to stay at hollywood. to me, hollywood is like new york city, "city that never sleeps". the chinatown is pretty big but i could hardly see any chinese.... i meant, there are more hispanics. also, it's not a problem to travel from one place to another place in los angeles although los angeles is reallyyy big, because they have a good public transportation system. beach at santa monica is pretty crowded but i still love it because ohio doesn't have beaches TT so i got my first ever bikini tan lines there lol but tooooo bad i didn't see any lengzhai sigh. p/s: i love ucla campus!

what i thought about san diego: great sea view and great beaches. i walked a lot in san diego because there's still room to improve for public transportation. love the la jolla cove, a place that i would never forget. it's so different with the beaches and i could see sea lions sunbathing under the sun! soooo adorable.

didn't know i already wrote that much. okay time to say ciao. my next trip will be disneyworld and bahamas! sooooooooo excited!

Saturday, July 21, 2012

-

這幾個月特別情緒化。

昨天我又失控了。現在根本就不需要看什麽電影才會哭,你只要在我面前提到keywords好像“胖”,“生病”,“死”,“洗腎”,我的眼淚就會掉下來了。好囧。

------------------------------------ 。---------------------------------

Wednesday, July 18, 2012

Aspettando il dottore...

Sono tornata a questo luogo che io odio -- l'ospedale. Ho un incontro con il dottore oggi. Non so ancora come sono gli miei analisi del sangue ma spero che tutto vada bene. Dio mi benedica.

Ho inviato il mio passaporto all'ambasciata di Canada circa un mese fa per fare una visa turistica. Questo venerdì è il trentesimo giorno ma non ricevo ancora il mio passaporto. Andrò in Texas fra 8 giorni e devo avere il passaporto. Li non posso andare se non riceverei il mio passaporto prima di partire.

...Il dottore non viene ancora...

Ok una foto nuova di me. Faccia tonda! Spero che il dottore diminuisca il dosaggio di steroid.

Sunday, July 15, 2012

UPDATE (七)

am being so emo. went to the hospital yesterday and got my blood work done. a few hours later, i saw a missed call from the hospital. they don't usually call me after blood work, but why did they call me yesterday? too bad i couldn't call back because the number is like a general number, it's shown no matter which phone in the hospital buildings the call is from. i've been thinking about this since i saw that number on my phone, and so this is how that freaking call ruined my beautiful weekend.

knees have been okay since the last time i felt pain in my knees. feet are okay too, no pain. eyes are okay too i guess. sometimes i feel pain at my back and waist. and these two days, i've been having headache and stomachache. haven't had headache for really long time, well maybe it's just because of the hot weather. but the stomachache freaked me out. it was sooooooo pain. and one more thing, there was a bunch of bubbles in my urine just now. i've been having bubbles in my urine because of kidneys problem, but this was the first time i had that much bubbles in my urine!

i know my kidneys and my body are getting worse, i can feel that. friends told me not to think so much and they said everything will be okay. i really wanted to stop thinking all those stuff, but dudes, it's about my body, my health and my life! it's so hard for me to stop being emo. you're not the one who's sick, you just can't understand how i feel. stop acting so optimistic and ask me stop being emo. i doubt if you can still be so optimistic when you're in the same situation as mine.





Monday, July 2, 2012

大餅臉

看到以前的照片超想哭的...我到底什麽時候才可以停葯?!還是一輩子都要吃葯?!T___T 每次照相的時候臉最大的就是我!
開始服用類固醇前
現在 TT
臉越來越大,鬍子越來越長,痘痘越來越多,現在還有雙下巴!!天啊啊啊啊啊啊啊啊啊

你們是不會明白這種心情的。

Monday, June 11, 2012

UPDATE (六)

  • 真的感冒了...... 醫生讓我今天打給他,如果我還繼續感冒的話,因爲這個有可能是viral infection,然後他就會把prescription send 到芝加哥的CVS。可是我覺得還好耶,感覺上痰和鼻涕比昨天的少了很多,喉嚨也不怎麽疼了,感冒應該快好了吧。再看看吧,希望不會是肺結核,也希望這次感冒不會讓葡萄膜炎復發~ 天公保庇!
  • 失去的十磅又回來了 天啊!現在我都不敢每天量體重了,看到磅上的數字我一整天心情就很不好。我現在已經盡量在控制了啊,可是爲什麽還是越來越重?而且褲子和腰帶很明顯地變緊了 (哭)
  • 終于不再失眠了!!(好感動)昨晚是我這幾個星期來第一次可以睡上六個小時,而且是一覺到天亮哦!之前每睡兩個小時就醒來,藥物份量減少后就三個小時,然後四個小時,現在終于是六個小時了 TT
  • 四個小時后我就要出發,開始我的芝加哥之旅!聼朋友說芝加哥很恐怖,很危險,但是我覺得應該沒什麽。就是這樣才更有挑戰性啊!lol 而且我又不是第一次自己一個人旅行,這些對我來説沒什麽好怕的啦 :p 還有,想到港式點心我就好開心~ 但是想到等下要坐七個小時的巴士就好憂傷,屁股會疼啦。
  • OMG我無法相信我現在竟然在看《步步驚心》。之前看了《宮鎖心玉》后就一直很抗拒穿越劇,況且這兩部劇很像,所以一直都沒有想要看《步步驚心》。可是考完試后太閑了,又沒有什麽新劇可以看,所以就想說看一下《步步驚心》。沒想到真的還不錯耶,我是覺得它比《宮鎖心玉》好看多了。女主角和阿哥們都好看多了 嘻。超愛四爺和十四爺~
  • 昨天師姑說我的臉好像有變小了,可是我覺得她是在安慰我耶。但是老實說,我現在是已經習慣了自己這張大餅臉,只是痘痘真的太多了,鬍子太長了TT 星期六去老人院的時候有朋友跟我說她覺得我最近變胖了,我忍不住又哭了 囧 還好沒有人看到。

Friday, June 8, 2012

UPDATE (五)


  • 之前瘦下來的十磅都回來了!肚子也越來越大~ 在網上看到服食類固醇一開始會很難瘦下來,至少需要幾年才可以瘦下來...... 我真的無法想像我接下來會變成多胖 TT
  • 這幾天右腳腳板很痛!就是那種走一步痛一下那種。我本來還以爲是不小心扭到了,可是那種病會造成腳板痛...... 
  • 除了腳板痛,我有時候膝蓋也會很緊。可是,今天早上我的膝蓋痛得讓我從睡夢中醒來了,現在還很痛,好想哭~ 我的病情是不是越來越嚴重了?關節痛是這種病的其中一種症狀,可是我剛剛上網找資料,原來膝蓋痛也有可能是因爲服食類固醇而造成肌肉壞死。好可怕!
  • 因爲感冒有可能會造成葡萄膜炎復發,所以我一直都很小心不讓自己生病。可是還是很難啦...... 我前兩天喉嚨開始痛,我就開始猛喝水,可是痰越來越多,今天早上開始流鼻涕了TT 因爲我的病的關係我又不能服食那種藥房賣的感冒葯,而且我一般生病都需要很長的時間才能痊愈。怎麽辦?我星期一就要去旅行了啦,不可以現在出事.....

Sunday, June 3, 2012

Update (三)

and this post is gonna be in english.


  • So i had been taking wrong dose of steroids because of the doctor's mistake -.- (such a lousy doctor). Since there's improvement shown on my blood test result, dose is now decreased to 40mg per day for 1 week, then I will be taking 30mg for 3 weeks and 20mg for 4 weeks. (Hopefully face will get smaller as dose is decreasing lol)
  • Went to Uveitis doctor on Friday and he said my eyes are fine for now and I don't need to use the steroid eyedrops anymore :) Finallllyyyyyy. After 3 months. My eyes started to get red in end of February and I really had a hard time. Thank God! I wish Uveitis won't come back to me anymore (Not easy though sighhh. It can come back easily when you get sick, like cold TT I guess I will need to bring eyedrops when I go traveling). And doctor asked me to go back in 1 month for follow-up, because the high dose of steroids that I'm taking might bring effects to my eyes.
  • Italian final tomorrow! And there's nothing for me to study. Okay not that I'm showing off (although my italian is so much better than my classmates), but we won't be tested on what we usually learn in class. On the final day we will be given some readings which are really hard for our level, and we will be asked to "guess" what they are about and answer some questions. For the second part, we will be allowed to use our dictionary, get a better understanding of those readings and answer some questions. Perhaps I should just do some revisions on the grammar stuff today.
  • The next final (which is also the last one) will be on Wednesday night. I already started studying for this freaking subject (Operation management) today and I guess I should have enough time for it? Didn't do really well for the midterm and I hope I can do well for the final. 
  • I've been a vegetarian for more than one month and this Thursday I'm gonna 破戒 for Bak Kut Teh! Will be having a Bak Kut Teh dinner with fellow Chinese friends. Didn't know foreigners love Bak Kut Teh too, yeah nobody can resist the heavenly taste of BKT!
  • I'm gonna 破戒 again for dimsum in Chicago! Haven't been eating dimsum for so looooong. The last time I had dimsum was in NYC's Chinatown last winter break. I'm so anticipating for my summer trips because all the places that I'm going have awesome chinatowns yay. FOOOOOOOOD! I'll be super fat when I come back for autumn semester lol. 
  • (This is random) I really miss my long and orange-ish hair!! Sometimes I do regret cutting away 10-inch of my hair.... It took so long to reach my waist TT 
Typing this at 4 in the morning. Insomnia again sigh. Shall go back to study.

Thursday, May 31, 2012

Update (二)


  • 今天去看了腎科醫生,才知道原來醫生把服藥指示寫錯了啦!原來我這一個月都服了雙倍份量的類固醇!好冤枉~可是第二次血檢報告有顯示進步,所以現在份量慢慢地減少了。希望幾個月后我就可以停用類固醇,臉也慢慢變囘原來的樣子,痘痘也會減少。
  • 今天護士讓我量了體重,體重增加了5磅!傷心。我要少吃一點才行。今天的血壓是128/88,好高哦!真希望快點停用類固醇~
  • 明天考這個學期的第一個final!所以今晚要努力念書了。最近覺得眼睛超累的,不知道是不是失眠的關係,還是因爲已經停用了眼藥水的關係。而且,感覺上我的視力退步了。不知道這是不是正常的?禮拜五去看眼科醫生的時候要問問他~ 希望我的視力不要一直衰退,我不想變盲啦 哭 看到網上有些人因爲葡萄膜炎視力一直下降,最後都看不見了。我會不會也這樣?
  • 還有一個星期,spring break就開始啦!好期待我的芝加哥之旅。最近我都盡量省錢 (雖然今天下午忍不住去外面吃午餐了 嘻)。今天收到Victoria Secret的email,有clearance sale耶!漂亮内衣才十五塊,超便宜的,好想買哦!可是我都忍住了......
  • 超喜歡我的白色籐椅,讓我的房間看起來超有氣質,超公主的!而且坐起來好舒服!我現在每天晚上都坐在我的白色公主椅上看書或用電腦~ 
好了,我要去念書了。希望明天的考試我會“作答如流”吧!


Tuesday, May 29, 2012

Update (一)


  • 臉越來越大,越來越圓了!照鏡子的時候我完全嚇倒了,因爲鏡子中的根本就不像我!我完全認不出自己了!而且整個臉都是痘痘,脖子和發際也有(哭)。體重也好像增加了幾磅...... 真希望能夠快點停用類固醇!幾天后就要去復診了,到時候會知道第二次驗血報告結果,希望病情有繼續改善。
  • 原來從1975年發現第一宗TINU后,到現在全世界已經有200多宗了。這種病原來沒那麽罕見啊~
  • 才知道原來蘑菇和燕麥對腎不好。香蕉糖份高,因爲類固醇會造成血糖增高,我又不能吃香蕉了。那我到底要吃什麽好嘛!媽媽叫我買薏米煲水喝。我買了可是就是一直懶惰煲~
  • 還有九天,我的spring quarter (OSU史上最後一個quarter)就快結束了!好期待之後的芝加哥之旅,雖然聽説芝加哥能逛的地方不多~ 而且我會待在那裏五天耶。表緊,我可以用一整天的時間逛outlet mall, 太興奮了!所以我現在就一直省錢啊,這幾天memorial day sale 我什麽都沒買耶,只爲了省錢到時候把整個行李箱裝滿再回來!
  • 從芝加哥回來那天我家會辦個火鍋趴哦!然後那個星期我有可能會host一個四十嵗的意大利女畫家。她好像來Columbus參加什麽的,不太清楚,目前還在跟她聯絡中。很巧她現在在芝加哥,我去芝加哥的時候有可能會跟她先碰個面。她會在禮拜天當天到,所以我會邀請她跟我們一起吃火鍋哦!很特別吧,她應該從來沒見過火鍋~ 這次可以見識到我們華人最愛吃的東西了!還有哦,她的英文不是很好,所以這次是我練習意大利語的好機會!整個暑假都沒人跟我說意大利語,我真的很怕開學后我的意大利語會退步耶~
  • 最近我好像變得有點積極了。之前整個人就很努力的想搞好Movie Night,然後現在要負責Veggie Cooking Night。這個星期又有意大利作文和Case要交,還有一個final,還要花幾個小時的時間去看兩個醫生,超忙的!但是我就覺得我最近過得很充實啊!原來生活充實感覺真好!
  • 夏天到了,天氣越來越熱。但是我想遲些日子我就會習慣了。人類嘛,能夠當人類而不是動物,就是因爲我們人類的適應能力比動物好。
好了,就update這樣多。是時候繼續edit我的意大利語作文了!爲了我的夢想,我一定會繼續奮鬥!

Friday, May 18, 2012

昨天的明天...


  • 今天開始,我每天只需要滴一次眼藥水噢。這樣滴一個星期,下星期就可以開始停止滴眼藥水了。然後再下星期去復診,看看眼疾是不是控制住了。希望它以後可以不要復發,但是葡萄膜炎通常有很大的機會會復發。所以我以後要提高自己的免疫力,不可以再感冒還是什麽的,因爲這些小病會引起它復發(要不感冒好難哦)。網上說每晚用熱毛巾敷眼睛對病情很有幫助,所以我昨晚開始這樣,還蠻舒服的~
  • 説到提高免疫力,因爲我服食類固醇,免疫力會大大減低,所以我最近都一直吃可以提高免疫力的食物(含維生素A的食物)。而且,昨天醫生告訴我我現在可以做運動了!之前因爲剛剛做了腎活檢,不可以跑步或做其他運動。現在終于可以去久違的RPAC了,好開心!我也下定決心戒酒了噢。雖然酒很好喝,但是爲了健康,我只好戒了。
  • 昨天打電話給醫生問我的血檢報告,醫生說我的肝磯酸有開始下降噢(還有其他我不認識的成分都有在慢慢邁向正常水平)!希望我的病可以快點好,這樣我就可以停葯了(但是至少還要服食幾個月~)。
  • 臉越來越圓了!超明顯的!每天照鏡子就很想把鏡子都打破 哭。聽到有人說我最近臉變圓了,我的眼淚就快流出來了唉。最近也很容易餓,尤其這幾天我早上五點就餓醒,醒來后就睡不着了。昨天因爲上課到晚上九點多,雖然下午五點吃了兩根香蕉,但是我很快就餓了,肚子裏都是胃氣。忍到晚上九點半回到家吃飯,胃才開始有點舒服。很擔心這樣下去我的胃會有問題,可是我又不想變胖, 怎麽辦~ 這兩天量體重,我好像重了三磅耶,傷心!
  • 前幾天走路的時候,腳踝下面(是叫腳板嗎)會痛,所以我都只能慢慢地走。然後有一次走著走著其中一只腳突然軟了一下,讓我差點跌到。我那時候嚇死了,趕緊到超市買了一加侖的高維生素D的牛奶,補補體内的鈣質和維生素D(因爲類固醇會導致骨頭疏鬆),雖然我現在每天都有服食醫生開的補鈣丸。
  • 已經吃素幾個星期了。現在我越來越愛吃菜,以前因爲不喜歡吃菜,所以從來不知道菜這麽好吃哈哈,現在我每天都自己炒菜吃,好像竹筍,豆苗,白菜,豆芽,豆腐,蠶豆,還有很多很多的蘑菇(最愛蘑菇了!)吃素不僅對身體好,而且還很環保噢。(但是我去旅行的時候應該會吃葷吧,我還是無法抵抗港式點心的魅力~!)

Saturday, May 12, 2012

什麽時候,連健康也變成了一種奢望

人總是要等到失去后才懂得珍惜。

今年二月,眼睛突然變紅。本來還以爲只是睡眠不足上火引起的,只要多休息多喝水就沒事。看了醫生點了人工眼淚,情況有點好轉,可是一星期后右眼突然變得很紅很疼。看了幾次醫生,醫生說我的眼睛有些白斑,懷疑我得了葡萄膜炎。之前上網查了知道這是一種眼疾,病情惡化的話會導致青光眼,白内障或失明。從醫生口中聽到那個詞,我有點崩潰,覺得自己的人生好像就快完了。(有點誇張吼)醫生接著說,通常是因爲身體其他部位有事,眼睛才會發出這個訊息,所以她讓我抽血檢騐。那天晚上,我開始用了兩种眼藥水:阿托品和一種類固醇眼藥水。每半小時滴一次,睡前的五分鐘每分鐘滴一次。就這樣滴了一,兩天,老是記著要滴眼藥水,所以都不能夠專心做事。過後因爲情況好轉,分量才慢慢減少了。可是眼藥水卻造成了我的視線模糊,看不見近距離的東西,要戴上老花眼鏡才能夠看見字。忘了說,我的體重從一月尾就開始下降,到目前我一共瘦了十磅(超誇張!褲子全都變得松松的)那時候我還以爲是因爲吃素變瘦了,原來是生病啊。

三月。報告顯示我血裏有些“東西”成分不正常,就好像血磯酸有點高,血小板有點少之類的。醫生說我有點貧血,腎也應該有些問題。以前常聽説人老了就會生病,糖尿病啊,腎病啊,高血壓心臟病,自己也老是覺得以後老了也會有這些病,但是從來沒有想過自己會在現在這個年紀得腎病。那時候我堅持不相信自己的腎會有問題,覺得一定是抽血的時候適逢經期所以驗血結果應該不准。而且,我覺得自己平時飲食習慣還蠻健康的,其他人吃得不健康也還獲得好好的,我怎麽可能會有事?過後,醫生讓我去看了專治葡萄膜炎的醫生。新醫生又讓我再去騐了血和尿。幾天后的早上,我被醫生的電話吵醒了。他在電話中告訴我報告出來了,他懷疑我得到TINU綜合症。好啦我承認那天我徹底崩潰,挂了電話后立刻哭了。打電話給朋友,然後在電話裏大哭,還說“我還年輕,爲什麽是我?”(超誇張,好像自己得到了絕症)眼科醫生讓我去看腎科醫生,然後我又再抽了一次血。(超誇張!我在三月就抽了四次血,而且一抽就抽了十二瓶!我那時候還以爲就是這樣才會貧血的LOL)那次醫生大概跟我解釋了這種病,我過後也上網做了功課。(最近因爲這樣,我的科學知識突然增加了很多!哈哈)TINU綜合症的中文名稱應該是叫做腎小管間接性腎炎-葡萄膜炎綜合症(好長!)。這是一種還蠻罕見的病,從1975年開始才只有40幾宗,大多發生在十五,十六嵗的青少年女性身上,病因目前還不清楚。(我平時沒什麽運氣,從來沒抽到大獎,怎麽這樣“幸運”的事情竟然會發生在我身上?!)這種病除了會影響眼睛,腎,關節也會有問題,有可能還會得到肺結核(就是俗稱的TB)。如果可以毉好的話,腎就會變得像以前一樣。如果不能毉好的話,就...... 會腎衰竭,下半輩子就要洗腎度日了。然後即使腎毉好了,眼睛也不會這樣就變好。詳細的資料就不說啦,很長~ 然後那段日子,我整個人超情緒化的。走在街上,吃飯,或者一個人在房裏的時候,突然就會哭了起來。師姑一跟我提到生病的事我就會哭的稀里嘩啦的(好戲劇化~)但是現在很少這樣了啦,只是偶爾會哭一下哈哈。

四月。醫生安排我做了超音波。(超酷的,就好像電視裏的孕婦一樣)照了超音波后,醫生決定讓我做腎活檢,就是從腎取一點東西出來檢驗。這樣才能夠準確的知道腎的情況,方便醫生給我葯吃。腎活檢其實還好,不會很疼,只是打麻醉針的時候會疼一陣。做腎活檢前我不能吃東西也不能喝水,然後早上七點就到了醫院。換上病人袍,護士開始幫我抽血,然後在我的手臂插管子吊鹽水,食指頭還夾著夾子,手臂上還綁著自動量血壓的。超誇張,電視裏看到的竟然會發生在我身上。那一整天我完全是躺在病床上被推來推去噢,而且我還有自己的病房,病房裏有電視機,洗手盆和鏡子。超酷的!大概九點多,我被推去一個房間。護士在我身上貼了那種電視裏病人胸膛上都有的圓圓的東西。然後他們讓我伏著身子(第一次在陌生人面前光著背部 羞~)他們先照了超音波,找出我的腎的位置,然後在我的左腎那裏皮膚上划了個圈圈。打了麻醉針后,他們就開始把一支東西插入我的皮膚。其實我看不到,因爲他們把我的臉蓋起來了囧。他們把針插入的時候我可以感覺得到,然後醫生讓我配合他們的動作停止呼吸,最後插了三次才結束(哭)其實有點疼啦~ 手術結束后,他們讓我平躺,然後把我推到另一個有其他人的病房。在那裏躺了一個小時,護士一直檢查我的血壓心跳什麽的,給我點水喝,然後我還很無聊的在那裏默默地哭 囧。一小時后我又被推回之前那個個人病房。在那裏我躺了好久,就這樣躺著看電視(是CSI哦),躺著吃(有吞拿三文治,葡萄汁,jello,竟然還有薯片!超不健康的),還有最慘的是躺著尿尿!!護士給了我一個扁形尿盆,因爲姿勢怪怪我不太習慣,所以第二次才尿出來哈哈哈。解決后護士還幫我擦屁股,好害羞!!那一刻我覺得護士好偉大~ 躺著躺著超悶的,所以就睡着了,睡醒又繼續看電視。過後護士讓我再抽血,紅血球數量只減少了一點,尿尿也看不見血絲,情況不錯,所以我下午三點就可以出院了!出院之前,護士跟我解説腎活檢后要注意的事情,就好像回家后最好要躺在床上,盡量不要走動,不要爬樓梯,至少兩個星期不可以提超過五磅的東西,不可以做運動之類的。我有盡量聽話了,可是有時候還是無法避免的啊,會“不小心”忘記自己不能夠提太重的東西。現在躺下來的時候背部和腰部還會有點疼疼的,但是我想過一陣子應該會不疼了吧。幾天后我去看醫生,醫生開始讓我吃葯了。他開了四种葯:一種類固醇和三种防治類固醇副作用的葯。類固醇在美國就像是一種萬能的葯,但是它的副作用其實很可怕。除了會造成滿月臉,熊腰虎背(哭),長青春痘,身體長毛這些外在的,還會造成肚子餓,血糖高,皮膚變薄(所以我現在臉頰都紅紅的),血壓高(久了會得心臟病),類固醇還會造成骨質疏鬆,胃不好,免疫系統變弱等等。所以我現在吃的那三种葯就是減低類固醇對我的骨頭,胃和免疫系統造成的傷害。現在我每天吞大概七或八顆藥丸。還好眼科醫生說我的眼睛情況好轉,所以在慢慢的減少滴眼藥水了(這種眼藥水要慢慢減少分量,才不會造成眼壓過高)。現在一天只滴兩次,一星期后一天滴一次,然後再一個星期不滴,看看眼疾會不會復發。我現在也不需要戴老花眼鏡了噢,只是視力好像有點下降,有時候遠距離的東西我看不清楚。我還在考慮要不要做一副超酷的眼鏡呢!

五月。 我最近應該是因爲服食類固醇的關係,臉開始變得好胖,肚子變大哇哇哇哇我不要!!超傷心!希望我的病可以快點好,聽説這些在停用類固醇后就可以恢復。現在我每兩個星期就要去抽一次血,今天早上才剛抽過呢。醫生也讓我照了肺部X光,證明我目前還沒有得到肺結核YAY。

之前我一直埋怨上天爲什麽那麽不公平。全球七十億人口,爲什麽偏偏是我?而且我每個星期都有去運動,不抽煙,只是偶爾喝點酒,也沒有做什麽傷天害理的事情,爲什麽才二十一嵗就生病了?但是現在想起來也不是一件壞事。就是因爲生病,我開始注意自己的健康,多喝水,開始吃素,少吃油,鹽和糖,也戒掉了酒和汽水。也因爲生病,我現在非常了解病人那種每天提心吊膽的心情。有時候看起來沒事,其實我們都不知道病毒已經在我們的身體裏慢慢地蔓延和起變化。那種不知道自己還有多少個明天的心情,真的很難受。所以,我也更加下定決心,要在自己還有時間去追逐自己的夢想,去看看這個世界,不讓自己帶著遺憾離開。

最後,套用一句名句精華:天將降大任于世人也,必先苦其心志,勞其筋骨,餓其体膚,空乏其身。生病應該只是上天給我的其中一個考驗吧。我現在唯一能做的,就只有聼醫生的話,乖乖吃葯,乖乖滴眼藥水,盡量不望壞處想。一切都只能由天了。